selected publications
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academic article
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A cross‐cultural convergent parallel mixed methods study of what makes a cancer‐related symptom or functional health problem clinically important.
Psycho-Oncology.
27.
2018
A single-center randomized clinical trial of palliative rehabilitation versus standard care alone in patients with newly diagnosed non-resectable cancer..
Journal of Clinical Oncology.
36.
2018
A systematic review of the measurement properties of the Body Image Scale (BIS) in cancer patients.
Supportive Care in Cancer.
26.
2018
A systematic review of the measurement properties of the European Organisation for Research and Treatment of Cancer In-patient Satisfaction with Care Questionnaire, the EORTC IN-PATSAT32.
Supportive Care in Cancer.
26.
2018
Adaptation and cross-cultural validation of the Spanish version of the Thyroid-Related Quality-of-Life Patient-Reported Outcome questionnaire.
Endocrinología Diabetes y Nutrición.
65.
2018
Conversion of standard retrospective patient-reported outcomes to momentary versions: cognitive interviewing reveals varying degrees of momentary compatibility.
Quality of Life Research.
27.
2018
Establishing anchor-based minimally important differences (MID) with the EORTC quality-of-life measures: a meta-analysis protocol.
BMJ Open.
8.
2018
How Should Thyroid-Related Quality of Life Be Assessed? Recalled Patient-Reported Outcomes Compared to Here-and-Now Measures.
Thyroid.
28.
2018
Interpreting European Organisation for Research and Treatment for Cancer Quality of life Questionnaire core 30 scores as minimally importantly different for patients with malignant melanoma.
European Journal of Cancer.
104.
2018
Is specialized palliative cancer care associated with use of antineoplastic treatment at the end of life? A population-based cohort study.
Palliative Medicine.
32.
2018
Measuring the quality of end-of-life care: Development, testing, and cultural validation of the Danish version of Views of Informal Carers’ Evaluation of Services–Short Form.
Palliative Medicine.
32.
2018
Moving forward toward standardizing analysis of quality of life data in randomized cancer clinical trials.
Clinical Trials.
15.
2018
Patients with Benign Thyroid Diseases Experience an Impaired Sex Life.
Thyroid.
28.
2018
Statistical analysis of patient-reported outcome data in randomised controlled trials of locally advanced and metastatic breast cancer: a systematic review.
The Lancet Oncology.
19.
2018
The EORTC CAT Core—The computer adaptive version of the EORTC QLQ-C30 questionnaire.
European Journal of Cancer.
100.
2018
What Facilitates “Patient Empowerment” in Cancer Patients During Follow-Up: A Qualitative Systematic Review of the Literature.
Qualitative Health Research.
28.
2018
A parallel-group randomized clinical trial of individually tailored, multidisciplinary, palliative rehabilitation for patients with newly diagnosed advanced cancer: the Pal-Rehab study protocol.
BMC Cancer.
17.
2017
Admittance to specialized palliative care (SPC) of patients with an assessed need: a study from the Danish palliative care database (DPD).
Acta Oncologica.
56.
2017
Development of an item bank for computerized adaptive testing of self-reported cognitive difficulty in cancer patients.
Neuro-Oncology Practice.
4.
2017
Health-related quality of life in melanoma patients: Impact of melanoma-related limb lymphoedema.
European Journal of Cancer.
85.
2017
Is admittance to specialised palliative care among cancer patients related to sex, age and cancer diagnosis? A nation-wide study from the Danish Palliative Care Database (DPD).
BMC Palliative Care.
16.
2017
Patient empowerment: a systematic review of questionnaires measuring empowerment in cancer patients.
Acta Oncologica.
56.
2017
Psychometric evaluation of an item bank for computerized adaptive testing of the EORTC QLQ-C30 cognitive functioning dimension in cancer patients.
Quality of Life Research.
26.
2017
Randomised clinical trial of early specialist palliative care plus standard care versus standard care alone in patients with advanced cancer: The Danish Palliative Care Trial.
Palliative Medicine.
31.
2017
Advance care planning – a multi-centre cluster randomised clinical trial: the research protocol of the ACTION study.
BMC Cancer.
16.
2016
An emotional functioning item bank of 24 items for computerized adaptive testing (CAT) was established.
Journal of Clinical Epidemiology.
70.
2016
Analysing data from patient-reported outcome and quality of life endpoints for cancer clinical trials: a start in setting international standards.
The Lancet Oncology.
17.
2016
Change in health-related quality of life over 1 month in cancer patients with high initial levels of symptoms and problems.
Quality of Life Research.
25.
2016
Danish Palliative Care Database.
Clinical Epidemiology.
Volume 8.
2016
Development of an item bank for computerized adaptive test (CAT) measurement of pain.
Quality of Life Research.
25.
2016
Development of an item bank for the EORTC Role Functioning Computer Adaptive Test (EORTC RF-CAT).
Health and Quality of Life Outcomes.
14.
2016
Disease-Specific as Well as Generic Quality of Life Is Widely Impacted in Autoimmune Hypothyroidism and Improves during the First Six Months of Levothyroxine Therapy.
PLoS ONE.
11.
2016
Focusing on Core Patient-Reported Outcomes in Cancer Clinical Trials—Letter.
Clinical Cancer Research.
22.
2016
How does pain experience relate to the need for pain relief? A secondary exploratory analysis in a large sample of cancer patients.
Supportive Care in Cancer.
24.
2016
Quality-of-Life Impairments Persist Six Months After Treatment of Graves' Hyperthyroidism and Toxic Nodular Goiter: A Prospective Cohort Study.
Thyroid.
26.
2016
Replication and validation of higher order models demonstrated that a summary score for the EORTC QLQ-C30 is robust.
Journal of Clinical Epidemiology.
69.
2016
The use of EORTC measures in daily clinical practice—A synopsis of a newly developed manual.
European Journal of Cancer.
68.
2016
Comparing three different approaches to the measurement of needs concerning fatigue in patients with advanced cancer.
Quality of Life Research.
24.
2015
Cross-cultural validity of the thyroid-specific quality-of-life patient-reported outcome measure, ThyPRO.
Quality of Life Research.
24.
2015
Development of a Short Version of the Thyroid-Related Patient-Reported Outcome ThyPRO.
Thyroid.
25.
2015
Development of a lack of appetite item bank for computer-adaptive testing (CAT).
Supportive Care in Cancer.
23.
2015
Quality of Life in Patients with Benign Nontoxic Goiter: Impact of Disease and Treatment Response, and Comparison with the General Population.
Thyroid.
25.
2015
The interaction between informal cancer caregivers and health care professionals: a survey of caregivers’ experiences of problems and unmet needs.
Supportive Care in Cancer.
23.
2015
A prospective evaluation of Dignity Therapy in advanced cancer patients admitted to palliative care.
Palliative Medicine.
28.
2014
Anxiety and Depression Are More Prevalent in Patients with Graves' Disease than in Patients with Nodular Goitre.
European Thyroid Journal.
3.
2014
Cancer caregiving tasks and consequences and their associations with caregiver status and the caregiver’s relationship to the patient: a survey.
BMC Cancer.
14.
2014
Confirmatory factor analysis of the thyroid-related quality of life questionnaire ThyPRO.
Health and Quality of Life Outcomes.
12.
2014
Detailed statistical analysis plan for the Danish Palliative Care Trial (DanPaCT).
Trials.
15.
2014
Development and implementation of PROgmatic: A clinical trial management system for pragmatic multi-centre trials, optimised for electronic data capture and patient-reported outcomes.
Clinical Trials.
11.
2014
Few items in the thyroid-related quality of life instrument ThyPRO exhibited differential item functioning.
Quality of Life Research.
23.
2014
Quality of life and symptoms in patients with malignant diseases admitted to a comprehensive cancer centre.
Supportive Care in Cancer.
22.
2014
The EORTC emotional functioning computerized adaptive test: phases I–III of a cross‐cultural item bank development.
Psycho-Oncology.
23.
2014
The chronic autoimmune thyroiditis quality of life selenium trial (CATALYST): study protocol for a randomized controlled trial.
Trials.
15.
2014
The thyroid-related quality of life measure ThyPRO has good responsiveness and ability to detect relevant treatment effects..
The Journal of Clinical Endocrinology & Metabolism.
99.
2014
The validity and reliability of the ‘Cancer Caregiving Tasks, Consequences and Needs Questionnaire’ (CaTCoN).
Acta Oncologica.
53.
2014
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dataset
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Patient empowerment: a systematic review of questionnaires measuring empowerment in cancer patients.
taylor-&-francis-group.
2017
Baseline sociodemographic characteristics of patients with autoimmune thyroiditis (AIT) and general population samples..
public-library-of-science.
2016
SF-36 scale scores..
public-library-of-science.
2016
ThyPRO scale scores..
public-library-of-science.
2016
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A randomised, multicentre clinical trial of specialised palliative care plus standard treatment versus standard treatment alone for cancer patients with palliative care needs: the Danish palliative care trial (DanPaCT) protocol.
BMC Palliative Care.
2013
An evaluation of the response category translations of the EORTC QLQ-C30 questionnaire.
Quality of Life Research.
2013
Cancer patients’ evaluation of communication: a report from the population-based study ‘The Cancer Patient’s World’.
Supportive Care in Cancer.
2013
Do advanced cancer patients in Denmark receive the help they need? A nationally representative survey of the need related to 12 frequent symptoms/problems.
Psycho-Oncology.
2013
Psychometric evaluation of the EORTC computerized adaptive test (CAT) fatigue item pool.
Quality of Life Research.
2013
Satisfaction with information provided to Danish cancer patients: Validation and survey results.
Patient Education and Counseling.
2013
The EORTC computer-adaptive tests measuring physical functioning and fatigue exhibited high levels of measurement precision and efficiency.
Journal of Clinical Epidemiology.
2013